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Focal awareness seizures or auras?
Epilepsy & Seizures | Last Active: Oct 22, 2025 | Replies (54)Comment receiving replies
Hi Chris,
My daughter has been trying to contact her neurologist about how to wean off her keppra. He told her if she doesn't have any focal seizures in 2 years, she can wean slowly. The nurse has not responded to any of her messages. She was on 1000mg twice a day. She went to 750mg for 2 months and didn't have any problems, and then 500 twice a day and its been 5 weeks and still no change. After 2 months she will drop to 250 mg for another 2 months. Overall, she feels better as she weans. She is exercising regularly and being careful in the way and what she eats. Eats a very limited amount of sugar. we are trying to find a new epileptologist to work with. It seems as though every neurologist just places you on keppra and doesn't really listen to what you are telling them. Thanks for checking in. My daughter is an adult so I have to trust she is doing the right thing.
Kelly
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@kelspal
Hi Kelly!
I'm sorry for my delayed response.
I'm so glad to hear that your daughter is doing better! I hope you'll find an excellent epileptologist for her care soon. 🙏 I understand that her appointment with the neurologist at Froedtert Hospital was somewhat disappointing?
As @adoptivemother once mentioned, it might be worth having PNES evaluated as well. Early this August, I experienced my first PNES episodes following a complex partial seizure. What surprised me was that the PNES episodes diagnosed at the hospital felt exactly like my usual auras. Through this experience, I learned that it's possible to have both epileptic seizures and PNES episodes. I've shared more details about this recent experience in the "Epilepsy or PNES seizures?" discussion, in case it might be helpful: https://connect.mayoclinic.org/comment/1383609/
How is your daughter doing with those "small auras" since her Keppra reduction? Has there been any change in their frequency or intensity?
Chris
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