Daily Migraines - How do we function?

Thanks. I'll discuss with my Neurologist. I occasionally take Prenisone for my lupus. I'll update this feed as I get more info. Thanks again.

Thank you. I appreciate you sharing what you and your friend are doing. Jim

Had constant migraines for over 6 months before was diagnosed with cervical dystonia, and started treatment with Botox. It’s going to be different for everyone, but I kept my brain as busy as possible. Worked on crafts and reading, as well as working full time (which my doctor did not agree with, but bills need to be paid). Not saying that I did really well with it all, but it helped distract me from the pain and stress.
Medication consisted of pain meds, Ubrelvy and now Botox and Tizanidine (a muscle relaxant). Also take an auto injector of Aimovig once a month to help prevent migraines. I still get several breakthrough migraines per month, but it sure beats having a constant migraine, and the severity of the headache is not as strong. In short, I feel like I have my life back.

You might also try Vyepti (infusion) and a beta-blocker. They have helped me. Jim

I am 42 years old and was diagnosed at the age of 15. I would have years when I didn't have one, and then years where I have been in bed for days and it's drastically changed my life. I have tried one thing after another. I do believe that mine are weather & hormone induced, as well as stress related. This is something that has taken over my life!! I am in the Midwest and for some reason when I lived on the Easf coast for 8 yrs, I didn't have a single one. Migraines didn't start up again until I moved back in 2017. It takes a significant toll on my mental and physical health. After YEARS of every possible treatment and medication, I have finally started Emgality. I started it in March of this year. I do still get them, but the frequency and intensity is SIGNIFICANTLY lower! It really has changed my life. I am also in OT to help me manage daily life. I am in the process of resetting my sympathetic nervous system. This was recommended by my neurologist as well as my pain specialist.

I wish you the best. You are not alone!

A quick but replay wish could be longer … don’t know how people keep up. All those things you use I’ve used did nothing for me. Now, nothing seems to work for me. I’ll hear a patient in the next room telling neurologist ‘oh, that 2nd round of Botox changed my life? 😢When I was in my 5th it only made it worse. 4th + year and prednisone, for me is right now the worst of them all!!!, Bizzaro dave, every med acts exactly opposite as it should, was so horrible I won’t go on. If we traded places, I don’t know how I’d be getting by. That is just me. Everything that works for others… nothing or worse for me. Maybe get 2nd opinion? We only have 1 neurologist here. I like him. I’d go to the next city but afraid of a meltdown along the way and leaving home.
I really I haven’t made things worse on you. I don’t mean to. I try to speak from my heart. I know how horrible it is…. ❤️

2 bad attacks tonight BUT decided somehow I will go to to my daughter’s wedding!!!! Don’t know when where or how . She’d understand but it’d be too much for me. Scared and proud!
😂Where s D Nick when you need him? Oh yeah, dead Oh well Call her soon…. Days
Exhausted and on top of the world!☺️

@eastbaydave - sorry to hear you had a couple bad attacks last night.

Do you know when an attack is coming on? If so, how do you know?

U have to get to the wedding somehow. I went to my grandson's wedding, walked him down the aisle , saw service. and left. At least I saw him get married. I was so sad I couldn't stay. Good luck!