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PNEUMONIA - A post Lobectomy complication
Lung Health | Last Active: Aug 3 6:37pm | Replies (5)Comment receiving replies
Hello Vic83, Thank you for your comments and questions.
It sounds like you have been through the wringer.
Basically no one- PCP, Surgeon, Pulmonologist or Oncologist has offered any guidance yet. I am hopeful that the Pulmonologist
will have some ideas. I did see a case Management Nurse from Center Well. She was here to evaluate my condition in regards to
PT and in general.
Her Take was that my exercise in general activity after leaving
The Rehab Hospital are so much greater than when I was in the Hospital that I over taxed my capabilities. It makes sense but I want to hear what the Pulmonologist has to say. Another note about my lung cancer. Initially I was scheduled to have 4 sessions of chemotherapy as a precaution against a recurrence. My hospital stay took that window of treatment off the board and there are no other plans except following up with regular CT's. There has been no updated pulmonary function testing,No mention of fibrosis , and I would guess that the CT did the whole chest/both lungs.
It should be an interesting talk with the Pulmonologist.
Replies to "Hello Vic83, Thank you for your comments and questions. It sounds like you have been through..."
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Hi falcon3729. By law (The Affordable Care Act-Obamacare) all your tests, hospital stay, doctor's notes must be posted online. This was done originally to facilitate the patient's ability to change doctors, but it has also proved to be invaluable in understanding your health situation. One will find mistakes and one can request corrections. Also, doctors don't tell you everything that is noted on a CT scan or other test report. They tend to stay in "their lane". It is up to the patient to read reports and look up terms to understand. Little by little one learns. That is what they mean when they say the patient must ADVOCATE for him/herself! Have you read your reports? You need to sign on to doctor's patient portal for each institution where you go.
And be aware that Specialists have subspecialties. So, if you are seeing a Pulmonologist for your breathing issues, you want to see one that deals with causes of SOB, not your cancer Pulmonologist. I have two Pulmonologists - one for cancer and one for fibrosis. The Pulmonologist should order the pulmonary function tests, oxygen titration test, 6 minute walk and overnight oximetry to determine your oxygen needs. Do you have an oximeter to check how your O2 is doing at different times?