If you have these symptoms would love your input.

Posted by rybren @rybren, Jun 30 1:30pm

Been to so many Dr’s, none have a clue.
Seems spike protein has messed me up, serious chronic fatigue, lately skin feels like I had a sunburn, burns and itches. Nothing visable.

Chonic fatigue hits me hard 1-2 days a week. Leaves me utterly exhausted for days, had every test imaginable.

Do others have these symptoms? What are you doing about it? Need some help.

Once again been to so many Dr’s, all types. They know nothing about this condition.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Profile picture for beachbum @arichards3

Similar story, 3 major medical groups all testing said ‘normal’ but I knew better. Finally turned to Doctors YouTube and Google filtering out the snake oil and chose Dr Bruce Patterson. He and his group have a specialized blood test that for me showed multiple markers slightly or way out of normal bounds. It also measures the presence of spike proteins. Never so happy to be told I was abnormal 🙂

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Dr Paul Anderson.Youtube.If you haven't,you need to check this doctor out.Seriously.He's got EVERYTHING you might need to understand and decide what might be for you(supplement wise)and testing wise.Online blog.Excellent podcasts.Check him out guys.It's free....

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Profile picture for tkinder @tkinder

I have had the same experience with Valacyclovir giving improvement. For me 1 gm twice a day has done the trick to minimize symptoms. There are multiple case reports about this online from reputable medical and science journals and a couple ongoing studies. My doctor was willing to give it a try with me.
I have posted this here several times and every time I do the post snd conversation disappears. This support group is only interested in us sharing our pain but not those bits of personal success.

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Valacyclovir is used to treat herpes virus infections, including herpes labialis (also known as cold sores), herpes zoster (also known as shingles), and herpes simplex (also known as genital herpes) in adults. It is also used to treat chickenpox and cold sores in children.

In your body, valacyclovir becomes the anti-herpes medicine, acyclovir. Although valacyclovir will not cure shingles or genital herpes, it does help relieve the pain and discomfort and helps the sores heal faster. Read more: https://www.mayoclinic.org/drugs-supplements/valacyclovir-oral-route/description/drg-20066635

Researchers are studying the use of anti-virals in the treatment of long COVID symptoms. See this study from 2023
- Treatment of Long-Haul COVID Patients With Off-Label Acyclovir https://pmc.ncbi.nlm.nih.gov/articles/PMC10205150/

@tkinder, you can see all your comments in your profile: https://connect.mayoclinic.org/member/00-30e070e8f693b11f494680/activity/comments/

Comments are only removed if a) they do not follow the Community Guidelines (https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/) or b) if the member has asked to have their comment or discussion removed.

I see you have participated in this related discussion:
- Anyone have experience with acyclovir antiviral for long covid? https://connect.mayoclinic.org/discussion/acyclovir-antiviral-for-long-covid

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Profile picture for Colleen Young, Connect Director @colleenyoung

Valacyclovir is used to treat herpes virus infections, including herpes labialis (also known as cold sores), herpes zoster (also known as shingles), and herpes simplex (also known as genital herpes) in adults. It is also used to treat chickenpox and cold sores in children.

In your body, valacyclovir becomes the anti-herpes medicine, acyclovir. Although valacyclovir will not cure shingles or genital herpes, it does help relieve the pain and discomfort and helps the sores heal faster. Read more: https://www.mayoclinic.org/drugs-supplements/valacyclovir-oral-route/description/drg-20066635

Researchers are studying the use of anti-virals in the treatment of long COVID symptoms. See this study from 2023
- Treatment of Long-Haul COVID Patients With Off-Label Acyclovir https://pmc.ncbi.nlm.nih.gov/articles/PMC10205150/

@tkinder, you can see all your comments in your profile: https://connect.mayoclinic.org/member/00-30e070e8f693b11f494680/activity/comments/

Comments are only removed if a) they do not follow the Community Guidelines (https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/) or b) if the member has asked to have their comment or discussion removed.

I see you have participated in this related discussion:
- Anyone have experience with acyclovir antiviral for long covid? https://connect.mayoclinic.org/discussion/acyclovir-antiviral-for-long-covid

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You have the same symptoms I have . Thankfully the fatigue has faded but the skin thing doesn't go away. Lyrica for the skin thing. I had delta in 23.

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I haven't been the same person since I got the Covid vaccine boosters. That was over three years ago. I'm unable to do much except my job, and that is at risk because of what I am going through. I have a condition that was caused by the virus and/or the vaccine (dysautonomia), and one of my other symptoms is that it triggers my depression. Even though I'm on meds, they no longer help. This happens weekly, I'm either in a depressed state or coming out of a depressed state. A good week for me is a week where I feel okay three days in a row. That doesn't happen too often. I have other symptoms like extreme anxiety and other nervous system dysfunction. I can't regulate my temperature, I'm either sweating or shivering, get bad sleeps, plus other symptoms, including constipation, extreme brain fog, asthma, shortness of breath, exercise intolerance.

My Epstein-Barr virus load was off the charts, and along with above I have recurring Chronic Fatigue. One small ray of light, I went on a supplement called mitocore, which helped me almost immediately and I continue taking it, I believe it had a direct positive effect on my CFS. There are other similar supplements, I am not endorsing any brand, it's a fairly new class of supplements that help with mitocore function, hence the name.

The bizarre nature of what I/we have: I get symptoms on a regular interval, sometimes starting Sunday, definitely Monday, Tuesday, Wednesday-Thursday is either still bad or I am recovering, and then it starts all over again. I've had some patches of time feeling okay, but then get hit with Covid again and the symptoms start all over.

I am not joking about this.

I have to go to work feeling Iike I want to die. The medical community, so far, has no solution. We have spent thousands upon thousands of dollars with no results. I've been dropped twice by therapists so I don't bother wasting my time anymore with therapy.

I have tried NAD+, LDN, HBOT, plus others. Bottom line, these treatments only address symptoms and all bets are off when I am sick.

I hope sharing this information is helpful to others.

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The things that I know of that have helped, are the following:

Glutathione (IV)has been used for breathing problems successfully. More research is needed before using it as a Covid treatment.
My practitioner has long Covid (irregular heart beats) and she uses a nicotine patch with some success. (One of our members says it alleviated all her symptoms.) My practitioner also swears by Oregano oil with black seed oil to stop infections.
One of our members said arginine cleared up all her long Covid symptoms.

From what I have gathered those hospitalized for Covid or have long Covid can be low on one of the following: B12, iron or glutathione.

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Profile picture for sweetwater9 @sweetwater9

The things that I know of that have helped, are the following:

Glutathione (IV)has been used for breathing problems successfully. More research is needed before using it as a Covid treatment.
My practitioner has long Covid (irregular heart beats) and she uses a nicotine patch with some success. (One of our members says it alleviated all her symptoms.) My practitioner also swears by Oregano oil with black seed oil to stop infections.
One of our members said arginine cleared up all her long Covid symptoms.

From what I have gathered those hospitalized for Covid or have long Covid can be low on one of the following: B12, iron or glutathione.

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I’m still hoping to find a physician in my area who believes that long Covid is
REAL!!

suef

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Profile picture for suefish @suefish

I’m still hoping to find a physician in my area who believes that long Covid is
REAL!!

suef

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It is hard to believe that such highly educated people can be so ignorant. Perhaps you may have some luck with a naturopathic physician.

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Profile picture for suefish @suefish

I’m still hoping to find a physician in my area who believes that long Covid is
REAL!!

suef

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Heartiest thanks.

suef

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Profile picture for dandre83 @dandre83

I haven't been the same person since I got the Covid vaccine boosters. That was over three years ago. I'm unable to do much except my job, and that is at risk because of what I am going through. I have a condition that was caused by the virus and/or the vaccine (dysautonomia), and one of my other symptoms is that it triggers my depression. Even though I'm on meds, they no longer help. This happens weekly, I'm either in a depressed state or coming out of a depressed state. A good week for me is a week where I feel okay three days in a row. That doesn't happen too often. I have other symptoms like extreme anxiety and other nervous system dysfunction. I can't regulate my temperature, I'm either sweating or shivering, get bad sleeps, plus other symptoms, including constipation, extreme brain fog, asthma, shortness of breath, exercise intolerance.

My Epstein-Barr virus load was off the charts, and along with above I have recurring Chronic Fatigue. One small ray of light, I went on a supplement called mitocore, which helped me almost immediately and I continue taking it, I believe it had a direct positive effect on my CFS. There are other similar supplements, I am not endorsing any brand, it's a fairly new class of supplements that help with mitocore function, hence the name.

The bizarre nature of what I/we have: I get symptoms on a regular interval, sometimes starting Sunday, definitely Monday, Tuesday, Wednesday-Thursday is either still bad or I am recovering, and then it starts all over again. I've had some patches of time feeling okay, but then get hit with Covid again and the symptoms start all over.

I am not joking about this.

I have to go to work feeling Iike I want to die. The medical community, so far, has no solution. We have spent thousands upon thousands of dollars with no results. I've been dropped twice by therapists so I don't bother wasting my time anymore with therapy.

I have tried NAD+, LDN, HBOT, plus others. Bottom line, these treatments only address symptoms and all bets are off when I am sick.

I hope sharing this information is helpful to others.

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I'm right there with you. I'm so sorry you're going through this and everyone else.
Sometimes I don't even want to mention some symptoms because it's insane what's happening with LC I personally did not take any vaccines for covid and I have all of the exact symptoms you're mentioning.
I hope you find relief at some point.
Hugs!

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