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ANA of 1:320, chronic symptoms… anticlimactic bloodwork?
I’ve been several years without a diagnosis… I consistently have an ANA of 1:320 or 1:640 (nuclear homogenous) with worsening symptoms, such as chronic muscle pain, difficulty swallowing, full body rashes, fevers, worsening vision and inflammation patches on my eyes and constant fatigue and arthritis in my joints. I am in my twenties. However, my bloodwork is pretty unremarkable. My rheumatologist says we wait for another annual check up for things to worsen in order to get answers. Any advice on what this could be AND what I should do?
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I know that until you find a rheummy that will actually look at your other antibodies your diagnosis can go no where. I spent 4 years with a rheummy with a weird ana and no diagnosis and loads of symptoms. It was my 3rd rheummy who realized that she was seeing something that didn't fit. I think they have a hard time. The human body is just too variable. But I can let you know about something that might help with the pain. (It did mine.) Low Dose Naltrexone. Read about it first. It might even help your immune system. Good luck and best wishes.
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1 ReactionFor what it’s worth - it took 3 rheumatologists before I found one who wasn’t just looking at blood work for a diagnosis, so if you feel like you’re not being heard keep looking for doctor who’s willing to think outside the box. My symptoms seem to keep evolving every couple of years and we’ve involved other specialists, but I still don’t have all the answers I’m looking for either. Persistence is key so don’t give up!