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Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 19, 2025 | Replies (37)
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I too had an alcohol septal ablation at the Mayo Clinic. The surgery was uncomfortable but necessary. Your Cartiologist recommendations will depend on the status of your atrium, ventricle, and septum. In my case, I had a sudden cardiac arrest and definitely needed the ablation. If you have HCM or HOCM is certainly not a one size fits all.
Replies to "I too had an alcohol septal ablation at the Mayo Clinic. The surgery was uncomfortable but..."
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I have been following several who are taking Camzyos but I have never been prescribed this medication. I am on Metropolol, Atorvastatin, and Lisinopril. After my alcohol septal ablation I still have chest pain and shortness of breath. Some days it's worse depending on my activity. However I now have Cardiac Amyloidosis (stiff heart syndrome) and I am experiencing ischemic strokes. I can feel the strokes which last anywhere from 30 seconds to 2 minutes. Some even affect my vision. I also now have a hole in the upper chambers of my heart in the septum. I had surgery to plug the hole but they could not get past the leads for my ICD. Now I have been placed on Eliquist (anticoagulant) to prevent blood clots. Also all 4 valves are regurgitating blood but not too bad so they are being monitored.
I'm dealing with the HOCM but this Cardiac Amyloidosis is no doubt going to be my maker. I had a brain MRI and I've had countless strokes which is causing short-term memory loss.