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know any causes of Chronic Nausea?

Autoimmune Diseases | Last Active: Aug 4 2:25pm | Replies (30)

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I was diagnosed in 1997 and eventually went to the University of Florida Shands where they did manometry testing to see where the tract was malfunctioning. It wasn’t just slow but peristalsis wasn’t in sync causing many problems. They were talking about a gastric stimulator when I developed some numb areas down nerve roots (down leg to foot, certain areas of fingers and hands). Fast forward to diagnosis of mono neuritis multiplex, then systemic vasculitis. I have a history of rheumatoid arthritis as a child. These were autoimmune problems and I began high dose prednisone and cytoxan. At that time gastroparesis wasn’t connected with autoimmune problems. Well, the first thing to improve was my stomach. The doctors at Shands were going to use my case in grand rounds. Today you find it listed in symptoms of many autoimmune diseases. The cytoxan didn’t work and I began IVIG infusions monthly. That was in 1998 and I continue them today. I was able to wean from the prednisone after four years and now pulse it around the treatment. I still have some trouble with gastroparesis but NOTHING like before. I too eat small meals, and Zofran is my constant companion. Now another part of my autonomic nervous system is failing and I’m having a terrible time maintaining my BP high enough to stay upright. There are so many other things in my history that I could write a book. My body loves attacking my tissues. I have Sjögren syndrome, Graves’ disease, progressing sensory and motor neuropathy. All around mess but I’m still here and have seen far more than I ever thought I would. So all I can say is keep advocating for yourself and don’t give up until you get some answers.

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Replies to "I was diagnosed in 1997 and eventually went to the University of Florida Shands where they..."

Thank you for sharing. Interestingly enough also have developed “axonal neuropathy” - I don’t have diabetes and the neurologist doesn’t believe the underlying cause to be neurological - he believes it to be inflammatory, so I’m still trying to get answers there as well. I haven’t been successfully able to wean from Medrol and I suspect IVIG might be helpful but I don’t have a diagnosis that would warrant it, so it feels like I’m on this hamster mill of cycling on and off different drugs. I begin my 8th biologic on Wednesday. I’m ever hopeful! Thank you for responding 🙂