← Return to HCM-ers: Introduce yourself or just say hi

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Jason, glad you found this site! Man glad you are getting seen by a COE and was able to catch this as fast as you did! We all have so much in common and you have every right to be freaked out by this!
Stay in contact not only with your cardiologist but as well with your primary care doctor! Together yall will all work at getting you back to your old self:)
Im 6 weeks into recovery from septal myectomy and just easing into spin biking this week to get me back on my mountain bike and hopefully running again:)
The attached you tube video explains so many symptoms i had before being diagnosed and years before being diagnosed i was talking to my local primary doctor and cardiologist about these symptoms, and continued to be misdiagnosed!
I live down in farmington NM so if you ever want to talk i would be happy to talk:)


Let me know what you think about this video it was so spot on and seemed like all the signs are there for health professionals to catch this but it is so easily missed!
I too have the same gene of unknown which they suggest all first line to have echo every five years till age of 60

Best of luck and again keep the close conversations with your HCM specialist!

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Replies to "Jason, glad you found this site! Man glad you are getting seen by a COE and..."

A very nice video and worth a watch but my cardiologist said he noted no obstruction and/or outflow concerns regarding obstruction. It would see, on paper at least, that I should be in good shape: apical HCM with small (< 1 cm ) apical aneurysm. No apical thrombus seen. Maximal wall thickness is 1.4 cm along the apical septum. And. to be sure, I probably really don't have it all that bad compared to many but still feel lousy: I don;t really notice any palpitations, runs of Vtach, chest pain, SOB, etc but a constant wooziness & brain fog. I suppose it could be metoprolol related but it was present before I started taking it. I've had one with outpatient cardiologist (HCM specialist) and he kinda shrugged and said maybe anxiety...it's certainly possible but genuinely feel its not that. Anyway, sorry to have just dumped all this out there - still adjusting to all this. Your reply was very, very much appreciated and thoughtful.