← Return to Low WBC, Low Platelets, Low RBC, Large cells - is it always Leukemia?

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Profile picture for asarnesejr @asarnesejr

OMG, I just cried reading your encouraging words. If i read correctly, from Dr Google, AML is the most aggressive form of Leukemia and the most difficult to treat. May I ask why you chose not to do the bone marrow transplant?

Also, how long and how difficult was chemo for you?

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Replies to "OMG, I just cried reading your encouraging words. If i read correctly, from Dr Google, AML..."

I believe your question was directed to me about why I elected to forego the Bone Marrow Transplant. The process of a BMT is long and my home situation did not have the support system required for after care (typically 100 days) for that reason I elected to move on with chemo therapy. Initially I had 5 days of chemo in my port (Dacogen) and 7 days of chemo pills which (Venclexta). I had no side effects that have deterred the treatments. Weekly blood draws have enabled my care team to fine tune my “maintenance” and after 15 months we believe we have found my “sweet” spot; 1 day of dacogen (in my port)and 2 days of Venclexta (pill) every 5-6 weeks.
I support whole heartedly the guidance loribmt has provided to you! She is the very voice of reason and more importantly first hand EXPERIENCE. Let her be your guide as you navigate these new (but not necessarily treacherous) waters. AML diagnosis doesn’t have to mean a death sentence. And as others have indicated we can live a long and productive life in spite of what the doctors may say. Best wishes and prayers and we expect your update after 8/11!