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Blood Cancers & Disorders | Last Active: 11 hours ago | Replies (12)
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Replies to "I can’t find my original post so starting a new one. CML diagnosed after CBC, echocardiogram,..."
Hi @mjbulte. It can be a little confusing finding an original post if you’re new. An easy way is to click on the little avatar (the little silhouette on the upper left of the page) OR in the upper right corner there a little symbol of a person. Either way will take you to your profile page. Once there, you’ll see a menu on the left side of the page for Discussions, Comments, Reactions or Book Marks. Look in either discussions or comments for entries you’ve made.
Your original post is here:
TKI vs Hydroxyurea.
https://connect.mayoclinic.org/discussion/tki-vs-hydroxyurea/
I’d responded to you earlier with this message about TKI vs Hydroxyurea. which I hope will be helpful for you:
https://connect.mayoclinic.org/comment/1358279/
Changing meds can be unnerving as you enter new territory of treatment. But for CML, as mentioned in my earlier reply, from my understanding HU is initially given only to reduce the high white blood cell count until there is a firm diagnosis of CML. Then treatment is switched to one that is more targeted to your condition while HU isn’t a targeted treatment. Read through my initial response where you’ll see informational links I’ve posted for you.
It’s wise any time we’re on medication to monitor and note any changes. So you’re already ahead of the game in having a good strategy for the future. I’m hoping you’ll find that this new medication will help you without any side effects except to keep the CML under control. Has your doctor discussed any specific TKI for you?