Replies to Hi, yes my oncologist is a NET specialist at Baylor Sammons in Dallas. The Y90 was…

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Neuroendocrine Tumors (NETs) | Last Active: Jul 31 5:14pm | Replies (12)

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@nana120

Hi, yes my oncologist is a NET specialist at Baylor Sammons in Dallas. The Y90 was determined after 8 mos of lanreotide and 3 mos of Temozolomide and the tumor continued to grow. He told me previously I don’t do well with big pharma, so I have concerns about cabozantinib just because it is the newest drug.

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Replies to "Hi, yes my oncologist is a NET specialist at Baylor Sammons in Dallas. The Y90 was..."

lindabees | @lindabees | Jul 31 7:37am

I'm sorry I (or rather my husbsnd who is the patient) don't have personal experience with cabozantinib but I had a question. Typically with nets they combine Temozolomide with capcetibine, a regimen known as captem. Did you also take capcetibine? The 2 drugs together are shown to be pretty effective for nets and this regimen has been approved and in use longer than cabozantinib.

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