← Return to Looking Back - What Were Your Early Warning Signs of Parkinson's?

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My husband's early signs were major depression/anxiety issues for years before and i was noticing about 4 years ago he was not swinging his arms when he walked and had a slight shuffle walk and his handwriting was getting small and cramped. He was experiencing some short term memory issues and some acting out dreams. He had OH but that was attributed to his heart issues. We went to a neurologist but when he heard he did not have symptoms of PD (he did not share anything and would not was not asked to talk to doc to share what i was seeing- he never shares anything well with docs and was in denial cause his mom had PD and he did not want to hear it. Go forward a year, very small tremors in hands, constipation issues, some dizziness on standing and PCP referred him to neuro again. Saw a different doctor. This time was told he did not have enough definitive symptoms but could be on the verge. Offered to start Levadopa- he turned it down - all he heard was that he did not have it- more denial. Another year, several falls - like at least once a week (broke hip on one- needed total replacement. And fell flight of stairs twice) more hand tremors, he finally realized he needed help and back to neurologist. This time diagnosed with PD. Unfortunately i feel he is escalating fast in just a few months- tremors, dyskinesia with major leg spasms, can barely walk even with a rollator walker, more memory issues, slurred speech, confused easily, hallucinations, lots of constipation, poor sleep but also very fatigued, can't write anything and mobility getting so bad because he falls frequently and with bad knees he struggles to get up- i can not lift him. i think we now need a wheelchair. I so wish he had not been in denial for so long as we might have been able to slow things down with meds and exercise.
My recommendation is do your research- there are lists of PD symptoms, including early ones that are non-mobility ones. Start exercise daily- that is good for anyone, PD or not. Journal any symptoms to be able to share concerns with Dr and self advocate - i felt the 1st Dr we went to should have asked me what i was seeing and on the day of the visit he was actively hiding his visible symptoms, so in a short 10 min visit declared him okay. If you feel you are having early signs, do not let it go, seek another opnion if needed.

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Replies to "My husband's early signs were major depression/anxiety issues for years before and i was noticing about..."

How old is your husband? How long from when you saw signs until today? I feel for you.