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Alzheimers care and treatments: Consult with Mayo Clinic?
Caregivers: Dementia | Last Active: 2 hours ago | Replies (51)Comment receiving replies
Hi Janell, what a coincidence that we received a call earlier today that insurance has approved my wife for Leqembi. We are now just waiting for someone to call to schedule the treatments. Up till this point I have been an introverted emotional wreck as not hearing back from anyone was killing me. I had a difficult time talking about the subject without starting to cry. I'm sure I will do a little better now. My wife is doing ok. She is scared of the possible side effects as well as what her quality of life will be during the treatments. Now that we are ready to start the treatments, I think she is a little less scared. I can't thank you enough for reaching out to see how we are doing. It means the world to me.
More updates to come...soon.
Ken
Replies to "Hi Janell, what a coincidence that we received a call earlier today that insurance has approved..."
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Oh, Ken @japlok, the waiting is so, so difficult and is such a rollercoaster. I am glad you found Mayo Clinic Connect and are comfortable sharing what you are learning and commenting when you have concerns.
You are getting treatments scheduled and I believe your Mayo Clinic visit is coming up soon. I hope you are able to work joy into these times. While totally not in your position, I do have experience with making the best out of medical appointments. I spent over 4 years getting LDL apheresis treatments that consumed the better part of one day every other week (process similar to dialysis). I found inspiration from another patient that called her time, a “spa day”. I planned something I thought was comfortable/fun to work into these days. I also have made little detours on my drive to MN, and as I have a day with Clinic appointments we incorporate small moments making pleasant memories in Rochester. I am trying to live each day with a healthy sense of urgency, including determination to find joy in each one.
You probably have seen the online Caregivers Support Group meeting. It may be valuable to check out. I notice the next meeting is Thursday, August 7: https://connect.mayoclinic.org/event/caregiver-support-group-25-4f980c4f/
I hope you and your wife are finding moments of joy, and look forward to reading your updates.