Cannot Regulate Body Temperature
I am at the end of my rope. I am having issues regulating my body temperature and no one can seem to tell me what is wrong with me. I’ve seen several specialists and no one seems to he able to provide a diagnosis. Most seem pretty quick to tell me that it doesn’t seem to relate to their specialty. It feels like no one even is trying to help. This has been an issue for more than ten years, but has significantly worsened over the last 4 years or so. Every time I get at all active, my body temp starts to increase. Ambient temperature doesn’t seem to have much bearing on the body temp. I don’t have a problem with the other end of the spectrum. I don’t seem to get cold. Almost never. Even when the environment is quite cool. It’s gotten to the point where I can’t even take care of my home and self-care is difficult. I just started checking my blood pressure when this is happening and I’m learning it is increased as well. It normally runs fairly low but is getting really high when my temp gets up. I’m seriously afraid of heatstroke or a stroke just trying to clean my house or fold my laundry. I’ve have multiple appointments locally and have also been seen more than once at Cleveland Clinic. I have a teenage daughter and I’m terrified that I’m going to leave her without a mom because I can’t get any answers. Where do I go from here? How do I get someone to help me and not just push me off into another specialty because they don’t know what is causing this?
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May I ask what tests they did to determine this.
Thank you for your reply. I was taken off Plaqueil when I started IvIg. Looking at it as sort of the "Big guns" of treatment. Let me know your progress.
First I had my neurologist (He did my EMG also) do a Small fiber byopsy, even 'though I had no symptoms I was very positive. Then my rhummy look for and found antibodies that indecated Sjogren's. (Blood work) Sjogren's is an autoimmune disease that can attack many systems. After you have had SF problems for awhile, they can influence the Large fibers that are your autonomic nervous system, and that are involved in a lot of systems. You can start to have problems with body temp control, balance to name a few.
Thank you. I had Therapath lab test sweat gland fibers after I was diagnosed with SFN. It was negative. I think I have had pre-diabetes for long time and that is the reason for small fiber neuropathy/