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Does anyone have any info on MGUS treatment or risk of progression?

Blood Cancers & Disorders | Last Active: Jul 29 3:37pm | Replies (39)
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Profile picture for Lori, Volunteer Mentor @loribmt

You’re in a real Catch 22 situation with your requiring phlebotomies and also needing ferritin for your thyroid medication to work.
I’m so sorry you’re in such a tough spot like that! I sure hope you can find a happy medium at some point. Between phlebotomies, as your red blood count rises again, do you feel any improvement in your energy levels? How high do your hemoglobin and hematocrit rise before you need require another phlebotomy?

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Replies to "You’re in a real Catch 22 situation with your requiring phlebotomies and also needing ferritin for..."
catalpa | @catalpa | Jul 29 3:37pm

Hi, Lori

Thanks for your comments…

I don’t reallyfeel any difference before/after phlebotomies.

HGB was 15.8
HMT was 47.9
before last phlebotomy (6/25)

I’m thinking that hematologist is overly cautious about RBCs!

My real concern is the anxiety, hair loss and tremors in my hands.

Be Blessed
Annita

My

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