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Repatha side effects not believed

Heart & Blood Health | Last Active: Sep 9 4:49pm | Replies (35)

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Profile picture for Sue, Volunteer Mentor @sueinmn

Thanks for reminding me about this study. After serious issues with statins, I have been using Repatha successfully for a little more than a year with a few tolerable side effects. (I get a nagging headache for a day or two, and sometime between 4 and 48 hours after injection an overwhelming bout of fatigue, relieved only by a 3-4 hour nap.) But my numbers are so good and my risk so high that I will continue for now. If eventually Repatha fails me, my cardio team say they have 2 more drugs in their arsenal.
Have you tried Repatha and had issues with it?
Overall, the first cardiologist onthe team said 15-20% of their patients cannot use it. I am fortunate to have found a great practice that works as a team, and although the med guy could use more personality or bedside manner, he knows his stuff when it comes to statin intolerance! The staff loves him because he believes the patient and keeps trying. His partner who treats my CAD defers to him on medication issues.

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Replies to "Thanks for reminding me about this study. After serious issues with statins, I have been using..."

Sue, sounds like you are in a good system. Mayo?
I haven't taken Repatha, and appreciate your review. I hesitate for fear of muscle loss and relax in the pretense of waiting for Crispr. https://ir.crisprtx.com/news-releases/news-release-details/crispr-therapeutics-reports-positive-additional-phase-1-data
I have cardiac genetic testing at Stanford in a few months. But I aced the cardiac treadmill stress test impressing only the techs.
I don't care about bedside manner and usually like the md with the bad reviews. I remind myself that these doctors are studying (thank goodness) while the rest of us are developing social skills.
Because the mechanisms of our side effects are often unarticulated or unknown, I'm not sure that tolerating them is healthful. But I do know that I'm a wimp.