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Question to ask about MGUS Diagnosis

Posted by bens @bens, Apr 10, 2022

Two months ago I was diagnosis with MGUS, with the fracture of left hip and blood tests. I have met once with a doctor in hematology. Next month will be three months after my first meeting. This is all new and over whelming. I feel fine so my next meeting what questions do I ask and whats next.

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Ginger, Volunteer Mentor | @gingerw | Jul 27 6:39pm
In reply to @tsch "I have just been found to have MGUS, after asking my PCP for recommendations after 60..." + (show)
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I have just been found to have MGUS, after asking my PCP for recommendations after 60 year old niece diagnosed with multiple myeloma and my sister having had it in 1991 and dying 3 years later (which was the norm then.) My question is do any of you with MGUS or MM have other family members who have been similarly diagnosed? Supposedly both are non-hereditary, but I am questioning that. We are all female and white, not what supposedly typical patient with MM is.

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@tsch You have had good responses from @wesleym and @pmm2001

For myself, noone else in my family has a similar diagnosis. In 2017 I was diagnosed with MGUS, that advanced into SMM [smoldering multiple myeloma] in 2018, that advanced into MM in 2019. Yep, I am an overachiever! I have been on treatment since August 2021.
Ginger

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tsch | @tsch | Jul 27 7:33pm
In reply to @gingerw "@tsch You have had good responses from @wesleym and @pmm2001 For myself, noone else in my..." + (show)
Profile picture for Ginger, Volunteer Mentor @gingerw

@tsch You have had good responses from @wesleym and @pmm2001

For myself, noone else in my family has a similar diagnosis. In 2017 I was diagnosed with MGUS, that advanced into SMM [smoldering multiple myeloma] in 2018, that advanced into MM in 2019. Yep, I am an overachiever! I have been on treatment since August 2021.
Ginger

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I agree wesleym had a good response. I am sorry that you have MM. There are some possible genetic components I have read, specifically parts of BRCA 1 and BRCA2.
Your progression seems a fast one. My main concern is for my niece who was just diagnosed with MM.

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