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Initial imaging and tests; what to expect after initial NETs diagnosis
Neuroendocrine Tumors (NETs) | Last Active: Jul 27 6:12pm | Replies (13)Comment receiving replies
Hello @ineedawhale and welcome to the NETs support group on Mayo Connect. On Connect, we have several discussions on lung NETs and I would encourage you to post your questions and concerns in one of those groups. Here is a link to all of the posts that discuss lung NETs.
https://connect.mayoclinic.org/group/neuroendocrine-tumors-nets/?search=Lung+NETs#discussion-listview
In these groups, you will meet several members who have lung NETs, such as @californiazebra and many others.
As you said, this was an incidental diagnosis. I'm wondering if you were having any breathing issues or other upper respiratory symptoms.
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Oh nice! I didn't realize there were individual groups, that's super helpful. Thank you!
No, I wasn't having breathing issues at all. I'd have never known without the CT for kidney stones. My lung function tests are all (still) at 100. But, I have pain that comes and goes. Some is dull, some is sharp. I am currently having a squeezing sensation on the outer left side and a dull ache in the upper left side as well. None of it is terrible pain, it's just annoying and it worries me that either things are spreading or maybe the tumor is just sitting on a nerve.