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Pituitary tumor symptoms: joint, muscle and body aches
Neuroendocrine Tumors (NETs) | Last Active: 1 day ago | Replies (179)Comment receiving replies
Hello @picturemanz and welcome to Mayo Connect. In your post, you mention being diagnosed with a pituitary tumor. How long ago was this diagnosed? Here is a link from the Epilepsy Foundation website describing a focal onset impaired awareness seizure: https://www.epilepsy.com/what-is-epilepsy/seizure-types/focal-onset-impaired-awareness-seizures?
Did this seizure disorder begin at the same time as your diagnosis of the pituitary tumor? What type of treatment are you receiving for the seizures and the tumor?
I look forward to hearing from you again.
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In 2022 my friends brought me to the ER after I just stopped and stared with no response for several minutes each episode.
A brain MRI showed a pituitary tumor larger than 1cm and Dr.s suspected pituitary prolactinoma. Surgical removal of the tumor is not an option for me due to my need for warfarin to safeguard against clots on my St Jude artificial heart valve.
I'm looking for anyone who has a similar situation experiencing focal impaired awareness seizures which I understand can be caused when the tumor puts pressure on the medial temporal lobe of the brain ? i never remember my seizures and I have no warning they are about to occur.
I was prescribed the generic form of Keppra for anti'-seizure meds and I was prescribed Cabergoline to hopefully shrink the tumor (prolactinoma). I am due for an MRI in September 2025 and I'm hopeful there are signs of shrinkage.