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What are most common side effects when starting HU (Hydroxyurea)?
Blood Cancers & Disorders | Last Active: Aug 15 9:42am | Replies (194)Comment receiving replies
"How I acquired it" -- that's the baffling question. No one knows the answer.
A broken bone, anyone can understand. Bone marrow going haywire -- huh? Such fun to live with a medical mystery.
I'm no expert, just someone else with ET, but I hope you will stop worrying about whether those Covid shots "caused" your cancer. ET has been around for a long time. It was recognized as a blood disorder/cancer more than a hundred years ago. And as you know, there were no Covid shots back in the 1920s.
Alas, the possibility of "catching" ET from a blood or organ donation has NOT been ruled out.
That's why, upon diagnosis, I stopped donating blood. And I also have removed the "organ donor" designation from my driver's license.
I hope the hematologist is providing you with excellent care!
Replies to ""How I acquired it" -- that's the baffling question. No one knows the answer. A broken..."
I have had this disorder or I guess was diagnosed about 5 years ago.
My thoughts were I have sleep apnea and that also went on diagnosed. So maybe my marrow trying to produce enough Hemoglobin as I was oxygen starved maybe my Marrow learned that behavior and never went back to the norm. I know cells have memory . Now I'm not Doc but but it made sense to me .
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I definitely does not have anything to do with covid or the shot or a blood transfusion. I was diagnosed after covid & I did not take any of the vaccines & I have never had a blood transfusion. My hematologist said they dont know why the mutation happens & that it's typically caught in older adults because they typically get more blood work done than younger adults. Im only 48 & was diagnosis with ET Jak 12 positive at 47. It was caught on a random blood test that I had done. My levels when 1st diagnosed were around 780's. Im not on anything but baby aspirin for now due to my low risk of blood clots & no history of them. I take plenty of other vitamins daily & my levels have been staying around 630's -670's. I was told I probably have had it for several yrs. before it actually started causing symptoms & increased levels. I thought the symptoms were being caused by being in peri menopause since some are the same. I also started having lots of migraines almost daily to the point I was out on a preventive medication about 10 yrs.ago. Who knows, that could have been when it happened since headaches are one of the symptoms. Hope this helps.