← Return to Polycythemia Vera and Nutritional Ketosis

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Profile picture for denvirg @denvirg

I am new to this, so all I will do at this point is explain my case, and ask questions on what is working for others with PV, as to their diet; rights and wrongs.

I am 83 years old and I've had PV for about 12 years. I take 2 Hydroxyurea 4 days a week, and 3 of same 3 days per week. I also take Hydroxyzine, a histamine for the itching and occasional sleep aid. I use this very sparingly, as I'm not a very pill user. That said...it does work well. My Phlebotomies have decreased from a pint a month, to once every 2-3 months, but I do a CBC every moth to check the Hematocrit level.

I am wondering if there are any suggestions for diet; items I should and shouldn't eat.

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Replies to "I am new to this, so all I will do at this point is explain my..."

Welcome to Connect, @denvirg It looks like you and your doctor have found the sweet spot with your medication to keep your blood levels fairly normal and you comfortable. I’m sure you’re happy without those monthly phlebotomies!

Diet can have some impact on blood cell production and in your case you’re trying not to add to your red cell production with foods that increase your iron. I found several articles for you but this one from verywellhealth.com does a good job summarizing which foods to eat, which to avoid:
https://www.verywellhealth.com/polycythemia-vera-diet-5204993
How was your PV discovered? Was this through routine blood work or were you having symptoms at the time?