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I’m so sorry to hear you have PET also. It seems to be a very rare affliction. I’m 77 and have dealt with it for 20 years after a cerebellar stroke. None of the ENT specialists I saw here in New Zealand had heard of it, so I did my own homework. Took time! Eventually I found something that has helped me significantly. I believe it is readily available in USA as well. Neilmed sinus rinse. It took me quite some time to work out a process but it works for me. Hopefully it may help you too. All I do is take one strong sniff in to nostril, tilt my head to one side until I can feel a small pop. A bit like a clearance. Bring head back to centre and ‘snort’ the rinse out into hand basin. I then repeat the same procedure on the other side. I think the trick is to hold the saline solution as long as you can before releasing it. I seriously give it a very ‘forced snort’ out, otherwise it doesn’t work for me.
Of course it’s impossible to do this while you’re out anywhere but I’ve also discovered by slowly drinking a cup of hot water as I sit in the car (can’t socialise) quietly focusing on relaxing my body this method works well for me.
When one is desperate they will try anything. I sincerely hope this is helpful for you.

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Replies to "I’m so sorry to hear you have PET also. It seems to be a very rare..."

Thank you for caring. Am using Patulend nasal drops. Ascorbic acid and is painful and is bad on gastritis. Have tried estradiol drops. Really hot tea or decaf is soothing to me also. My voice is so loud in my head. The anxiety is painful and makes stomach worse. I pray you will be well from today forward.