← Return to Can mold toxicity cause small fiber peripheral polyneuropathy?

Discussion
Comment receiving replies
Profile picture for logicalperson @logicalperson

Yes. I have tried massage, acupuncture, chiropractic, myofascial release therapy, craniosacral therapy; these all felt wonderful and helped for maybe a day. I wear compression stockings when on my feet which allow me to be upright for about 2-3 hours before burning gets intolerable. My greatest help has been the many frozen ice bags I use on neck and pudendal area when lying down.

I also use ice in bed as needed on burning feet, burning shoulders and ulnar areas, burning spastic palms of hands which often occurs.

Capsaicin cream has helped in burning areas to offset the nerve burning, but I can't use this on pudendal area, of course. It's difficult to find a Capsaicin cream that is strong enough to make a difference.

The gabapentin does help a bit, depending on how much I allow myself to take. On horrible nights I will occasionally take 900 to 1800 mg. I hate taking prescription drugs.

I have a rough scratching long strap that I use when the deep itching happens, to calm down my skin.

My biggest help is realizing I can no longer eat at all at least three hours before sleeping. I have learned that all burning pain and "swelter" episodes of waking of sweating hot, burning and deep itching are reduced greatly by a no to low carb diet. Anything that spikes my blood sugar makes my burning and "swelter" episodes much worse. Anytime I eat anything sweet or anything made with flour, I will have rather horrendous BMs shortly after...sweating, burning all over, nauseating, cramping like I'm in labor BMs.
Once I learned this association, I stopped all foods with sugar, flour or starch. It's very restrictive for a former lover of cooking and baking, but has greatly reduced these episodes.

My entire life now revolves around keeping my symptoms as minimal and controlled as possible. I also avoid people who make me anxious since anxiety also kicks in symptoms.

Thank you for the link you provided for "help." I will check it out right away.

Jump to this post


Replies to "Yes. I have tried massage, acupuncture, chiropractic, myofascial release therapy, craniosacral therapy; these all felt wonderful..."

I too started looking more seriously at my diet, carbs and intermittent fasting as a way to get healthier after reading Dr. Terry Wahls story and her book The Wahls Protocol - https://terrywahls.com/about/. You might find another discussion interesting if not helpful that's in the LCHF Living & Intermittent Fasting Group.
-- Low-carb healthy fat living. Intermittent fasting. What’s your why?
https://connect.mayoclinic.org/discussion/low-carb-healthy-fat-living-intermittent-fasting-whats-your-why/

@logicalperson A new potential cause for my worsening symptoms has come to light.
In September 2025, my apartment was discovered to have toxic mold, the source of which was above my bed in my bedroom ceiling, and later discovered around perimeter drywall of both bedroom windows when blinds were removed.
I've lived in this Arizona apartment since February 2014 before all my health problems started. Every summer during monsoon season rains, my ceiling above my bed would heavily leaked. I took videos, pictures, and sent all of them with texts to my property managers who, for 11 consecutive summers, promised to fix this but never investigated or fixed until the last time in September 2025. The mold problems were found and they demanded I move out instead of just fixing the problem. I was "released from my lease" and they did nothing else