Replies to Yes, I have hereditary hemochromatosis. My ferritin is currently at 3886 and saturation is 97%. I…

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Blood Cancers & Disorders | Last Active: Sep 2 9:31am | Replies (11)

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@dag1

Yes, I have hereditary hemochromatosis. My ferritin is currently at 3886 and saturation is 97%. I am miserable most of the time. My body aches all over. I itch constantly. I get nauseous often. It’s starting to be hard at work for me. I have liver issues. 30% stenosis. It’s confusing and no one really knows much about it. I get phlebotomy once a week.

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Replies to "Yes, I have hereditary hemochromatosis. My ferritin is currently at 3886 and saturation is 97%. I..."

Lori, Volunteer Mentor | @loribmt | Jul 25 8:56am

Welcome to Connect, @dag1. Goodness, 3886 is a significant ferritin number. You mention having phlebotomies weekly to reduce the overload. Have these helped at all? Were you just recently diagnosed with hemochromatosis?
From my understanding, years ago, many people went undiagnosed because so little was known about this blood disease. Since this is hereditary do you recall other family members having your similar symptoms?

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