My oncologist is more amenable to adding Nubeqa rather than replacing Orgovyx with it, which is what I’d prefer after one year. Yes, Orgovyx is also very expensive: nearly $9 K retail monthly or $3500 insurance cost, but $125/mo coinsurance which very fortunately is being covered by a grant through Biologics pharmacy. Grateful!
Nubeqa is a little more, about $14,000 per month, retail and it won’t go generic until 2036 . So thankful my insurance covers it. But I do have a $2000 deductible each year.
Thanks for your response vbadams. Had colonoscopy which showed something d; referred to urologist PSA was 54 had PET scan spred to lymp node in clavicle and bone in pelvis. Started Nubeqa along with an injection ever 3 months after lst injection PSA went from 54 to 17.
Nubeqa is a little more, about $14,000 per month, retail and it won’t go generic until 2036 . So thankful my insurance covers it. But I do have a $2000 deductible each year.
Yes, I'm grateful for my Medicare D $2K coinsurance limit, for sure! I think it's interesting that I'm credited not for what I pay but rather for what I'm charged. With Orgovyx, I paid my standard $125 for the first month but a grant is paying for this calendar year. Since I'm also taking Eliquis as prescribed by my cardiologist, my charges hit the $2K mark mid-spring. And with radiation, I hit my $4K major medical coinsurance limit early, so my summer colonoscopy and hand arthritis surgery had no copay, as do PT sessions afterward. Those caught without insurance can be easily bankrupted. I'm understanding better why insurance premiums can be high.
Does anybody have night sweats? The heat seems to affect me more now and I sweat at the drop of the hat. Thanks to all have posted various comments. My doctor told me I'd always have to be on medicine along with injections. I thank God for medicine and each day is a gift.
My husband recently started Nubeqa after not being able to tolerate Zytiga due to elevated liver enzymes. He has been taking Nubeqa for about 10 days and started experiencing nausea and vomiting today.
Wondering how 'common' nausea and/or vomiting is for other patients?
My husband recently started Nubeqa after not being able to tolerate Zytiga due to elevated liver enzymes. He has been taking Nubeqa for about 10 days and started experiencing nausea and vomiting today.
Wondering how 'common' nausea and/or vomiting is for other patients?
I currently take Nubeqa, I always take it with food and have not had any digestive side effects. Been using it for 10 months now. My pharmacy told me it will upset your stomach if you take it in on empty stomach.
I have been on Nubeqa almost 3 years. I always take it with food and within 1/2 hour of being 12 hours between doses. No digestive problems to report. I do experience some brain fog and weakness but I am also on Lupron every 3 mos and have had chronic lymphocytic leukemia for 20 years so it’s hard to say where my symptoms come from. But the combination of Nubeqa and Lupron have kept my PSA and testosterone levels to virtually zero. Also, my prostate cancer had already spread to my liver and bones when I was diagnosed and I’m still alive and kicking ( thought not as long as I used to).
So , to summarize, Nubequa is helping to keep me alive. That’s worth the side effects.
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Nubeqa is a little more, about $14,000 per month, retail and it won’t go generic until 2036 . So thankful my insurance covers it. But I do have a $2000 deductible each year.
Thanks for your response vbadams. Had colonoscopy which showed something d; referred to urologist PSA was 54 had PET scan spred to lymp node in clavicle and bone in pelvis. Started Nubeqa along with an injection ever 3 months after lst injection PSA went from 54 to 17.
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1 ReactionYes, I'm grateful for my Medicare D $2K coinsurance limit, for sure! I think it's interesting that I'm credited not for what I pay but rather for what I'm charged. With Orgovyx, I paid my standard $125 for the first month but a grant is paying for this calendar year. Since I'm also taking Eliquis as prescribed by my cardiologist, my charges hit the $2K mark mid-spring. And with radiation, I hit my $4K major medical coinsurance limit early, so my summer colonoscopy and hand arthritis surgery had no copay, as do PT sessions afterward. Those caught without insurance can be easily bankrupted. I'm understanding better why insurance premiums can be high.
Does anybody have night sweats? The heat seems to affect me more now and I sweat at the drop of the hat. Thanks to all have posted various comments. My doctor told me I'd always have to be on medicine along with injections. I thank God for medicine and each day is a gift.
My husband recently started Nubeqa after not being able to tolerate Zytiga due to elevated liver enzymes. He has been taking Nubeqa for about 10 days and started experiencing nausea and vomiting today.
Wondering how 'common' nausea and/or vomiting is for other patients?
I currently take Nubeqa, I always take it with food and have not had any digestive side effects. Been using it for 10 months now. My pharmacy told me it will upset your stomach if you take it in on empty stomach.
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2 ReactionsI gave an appt with oncologist on Thursday at 130 praise the Lord 🙏 Againn Danks to.you all.
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1 ReactionI've been on Nubeqa since March and have not experienced any side effects other than reduced PSA and Testosterone. Knock on wood. 😉
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1 ReactionI have hot flashes with nubeqa. At night I get hot and sweat some even with ac on. I been using a fan and that has helped.
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1 ReactionI have been on Nubeqa almost 3 years. I always take it with food and within 1/2 hour of being 12 hours between doses. No digestive problems to report. I do experience some brain fog and weakness but I am also on Lupron every 3 mos and have had chronic lymphocytic leukemia for 20 years so it’s hard to say where my symptoms come from. But the combination of Nubeqa and Lupron have kept my PSA and testosterone levels to virtually zero. Also, my prostate cancer had already spread to my liver and bones when I was diagnosed and I’m still alive and kicking ( thought not as long as I used to).
So , to summarize, Nubequa is helping to keep me alive. That’s worth the side effects.
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Like -
Helpful -
Hug
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