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Weaning off keppra protocol?

Epilepsy & Seizures | Last Active: 3 days ago | Replies (103)

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Profile picture for royanthony @royanthony

I've been on Keppra for years at the highest dose I'm told is allowed; e.g. 3000 mgs per day. The dosage has helped me dramitically. I have no other side effects. I do have issues with sleeping and I wonder if the Keppra contributes to that. Any comments would be appreciated.

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Replies to "I've been on Keppra for years at the highest dose I'm told is allowed; e.g. 3000..."

@royanthony I stopped dreaming when I was on 1,000 per day. I knew that was not good.
I would suggest at that high dose, you be aware that if you miss your meds for a certain amount of time, you will have a seizure. Not because of epilepsy, because of the withdrawal, and that it can cause seizures. My doctor kept me on for 35 years, when I was actually was seizure free. Every 10 years or so, I'd have a seizure ALWAYS related to me missing my meds.
So he missed that fact that OTHER than the missed meds, I could be a candidate for weaning or taking less MGs. Still doing fine here. The tornado weather always affects me because of the electricity. I take as needed (about 40 MGs) now.