Anyone have success with treatment for vaginal Lichen Sclerosus?

@fdixon63 Welcome to Mayo Clinic Connect! I’m so glad you found this support group! I see that you have posted your question in the Women’s Health Group. That is a great location as you will reach more women with your questions.
I’m so glad that you found the group and hope you will feel free offer thoughts.

Use one every time I urinate.

@30512dorothy Welcome to Mayo Clinic Connect!I’m glad that you’re here. Can you tell me how you found MCC?

Hi all LS sufferers. I've had surgery for labial adhesions--3 months ago. I'm still having sharp, strong pain when I pee. The surgeon's NP says to use coconut oil or olive oil. They also say I will have to use estrogen cream nightly for the rest of my life. I don't have a problem doing that but it does nothing for my LS. I began using clobetasol about 5 days ago and initially it seemed to help. Now, not so much. I've read that some have began using a bidet to help their LS. How many have found that helpful? I have a pari bottle with an extendable ?neck that is very easy to use but just checking if any others have tried this and what has been the results. Thanks all.

I was diagnosed with vaginal Lichen last May by a gynecologist and now my dermatologist is treating me for it. I use Clobetesol ointment every other day and the off days I use Pur brand Coconut Oil ozone-infused. (Amazon) It is expensive but worth it for the pain/itching relief it gives me. Some say they don't like the smell of it but I think it is odd but for the relief it gives me, it is a welcome fragrance. Best of luck getting the relief you need.

My journey began with the fact it took 10 years to be diagnosed which means I have quite a bit of scar tissue. My dermatologist made the diagnosis. Needless to say I changed my gynecologist. I currently see both my dermatologist and my gynecologist yearly. I've had this condition for about 26 years. I had to spots biopsied for cancer and thankfully they were negative.

I use Aquaphor 1 % anti-itch cream in the vaginal/vulva area once or twice daily. I also use regular Aquaphor in the anal area at least once daily. I am very comfortable now. Note I also use Estrace cream on the vaginal opening once or twice a week.

Other recommendations: use Dreft laundry soap for babies or similar, don't use dryer sheets (I use dryer balls), use mild soap such as Dove or Norwex wash rags that don't require soap, pat - don't wipe, use Charmin toilet paper with Aloe Vera or similar, limit any bike riding or at least "grease" up when you do and use padding.

I also have found that Jockey Worry Free underwear is really nice. It is slightly padded but mostly is important as with all the lotions I don't have to worry about anything showing through my clothes.

Everyone is so different but I hope some of these ideas might help you out and give you hope!

@gmabecky1955
What do you use for the pain?