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Thank you Lynne.. I am a nurse as well, living a long time with this. I have to temper my Aspirin use to only twice a week, or my eyes will start to bleed. I have also learned that since the platelets are pushed into production too quickly, they do not work as well to clot, and I have found that even when I am not on aspirin I have an extended bleeding time. I just tell the doctors that I still bleed easily even though my platelets are too high, and this really confuses them. But if Platelets are immature.. they do not do what they should as far as clotting, am I right? Thanks for being part of this conversation. I do not know too many people who have had this for a long time! Take care hoping for many more years!

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Replies to "Thank you Lynne.. I am a nurse as well, living a long time with this. I..."

Yes, my understanding is that the platelets are not normal so they can clump when they are not supposed to or they will not clump and then we bleed in places we do not want to. This is such an interesting tightrope to walk. My explanation was so simplified that I neglected to mention unwanted bleeding. Thanks for pointing this out. That is always a problem when we try to describe a complex disease process we end up leaving out some of the important nuances. I hope you navigate this life and live well. I am trying my best too. Nice to chat with you.