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Can you say more about the "TENS, which quickly decreased my breathlessness"? How and where did you apply the TENS unit? How used? and what specifically improved wrt your breathing? I'm guessing this acted as a VNS?

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Replies to "Can you say more about the "TENS, which quickly decreased my breathlessness"? How and where did..."

I used the TENS largely in desperation due to all the disabling symptoms. Many of those would probably have been diagnosed as dysautonomia had I been able to get proper medical care.
The electrodes went on the stragus of one ear and lobe of the other.
I used it over 3-4 days and the continous breathlessness went away, almost completely.

I also used a different array (placement of electrodes) on my ankle for urinary incontinence. That also worked, but only if I used it every day. Because I wanted professional guidance that was not available to me, and other LC patients were reporting problems with exacerbated symptoms in their self-treatment with TENS. I stopped.
Finally a visit to a neurologist, who didn't really understand what was going on with LC, got PT referrals, but I couldn't really drive, so never got that expert guidance.
I know TENS can help with pain and did help me with 2 of the most limiting LC symptoms at that time.

I hope that helped. I tried to upload a less personal and more comprehensive description of TENS yesterday but it was too large.