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DiscussionEssential Thrombocythemia: Looking for information and support
Blood Cancers & Disorders | Last Active: Dec 23, 2025 | Replies (657)Comment receiving replies
Replies to "Ocular migraines and migraines and TIAs can be caused by high platelets and/or not taking aspirin...."
This is helpful to me. Recently started on ASA and HU at age 74. I had been reporting a big increase in the ophthalmic migraines from less than once a year to twice a week. My PCP and ophthalmologist had no opinions despite my persistently elevated platelets over the year. I feel that this was somehow triggered by a Covid infection I had a few years ago. Don’t know if there are studies showing a link, do you?
I too am a retired NP, but reluctant to push when I know nothing about this disorder, but neither does my PCP!
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Thank you Lynne.. I am a nurse as well, living a long time with this. I have to temper my Aspirin use to only twice a week, or my eyes will start to bleed. I have also learned that since the platelets are pushed into production too quickly, they do not work as well to clot, and I have found that even when I am not on aspirin I have an extended bleeding time. I just tell the doctors that I still bleed easily even though my platelets are too high, and this really confuses them. But if Platelets are immature.. they do not do what they should as far as clotting, am I right? Thanks for being part of this conversation. I do not know too many people who have had this for a long time! Take care hoping for many more years!