Benjamin, Good luck to you and anyone else that has this malady. I too have it. Technically it is Type 2 in which the disease has more numbness (knees down and forearm to hands) and a little less pain than Type 1. Mine is also Late Onset, I am 74 and had no symptoms until about 50. It skipped my mom from my grandfather who walked with a cane and had weak legs which he described as ants crawling. No one knew what it was of course. Thought he had bad back.
I now wear AFO’s (leg braces). Before all of this I was playing basketball and softball.
I take Pregabalin (Generic of Lyrica) which gives me relief and less brain fog. Ask your doctor about that.
Shoes are very hard to find and are crucial. Please exercise as much as possible. I walk with trekking poles, swim, stationary bike, YMCA, etc. One word of caution, I have had 3 genetic tests without identifying the gene culprit, so even if none shows up yet, a person still might have CMT.
One final note: As many people have CMT as have MS! The good people at HNF ( Hereditary Neuropathy Foundation) are getting the word out and helping with many aspects of our disease. Blessings to you Benjamin. Bob Vollmann