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Liver transplant - Let's support each other

Transplants | Last Active: Aug 8 10:40am | Replies (1688)

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Profile picture for Rosemary, Volunteer Mentor @rosemarya

@fowlair, I'm not sure whether you are having your appointments this week or starting next week. Anyway, I send my hope and a hug that all goes smoothly for you.

When I was evaluated, I was very weak and sick. There was no way I could have even gone alone. I don't remember, but there might ave been some tests/scans that involves some anesthesia-but not sure.
Is there someone who can accompany you, even though they will not be your primary caregiver? A 2nd set if ears is beneficial. Have you spoken to the evaluation team about the need for a primary caregiver to be with you?

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Replies to "@fowlair, I'm not sure whether you are having your appointments this week or starting next week...."

I started the appointments on Monday July 21. They go through early August. The evaluation coordinator said I only needed a caregiver for the consultations, not the tests.

I feel wonderful, have no pain, have my strength and have great cognition. You wouldn’t know there was anything wrong with me. But I have a rapidly growing 2cm tumor right next to the vein in the center of the liver and non-alcoholic cirrhosis. So far my tests have gone well, at least I think so. I was surprised by them taking 30 vials of blood!

I meet with the social worker on Friday the 25th. Hopefully will learn a lot more then.