1. < Osteoporosis & Bone Health
Profile picture for ans

Osteoporosis and Forteo (teriparatide): What to hear experiences

Posted by ans @ans, Feb 16, 2023

Wanting to hear people’s experience with using Forteo generally , good and bad. Concerned about having to travel and keeping it at the 36-46F range. Also would like to hear from those that used it 15-20 years ago and if any medical issues have come about that are related to Forteo.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for nwyatt
nwyatt | @nwyatt | Apr 2, 2025
In reply to @broken13 "I had 13 compression fractures before starting Forteo. I completed the full 24 months and have..." + (show)
Profile picture for broken13 @broken13

I had 13 compression fractures before starting Forteo. I completed the full 24 months and have not fractured since. Now, 7 years later I have just started the generic version of Forteo and will do that for 6 months and then Evenity. Forteo shows bone growth at 3 and 6 months, so I am hopeful!

Jump to this post

What did you do/take in the 7 year interim?

REPLY
1 reply
Profile picture for broken13
broken13 | @broken13 | Apr 2, 2025

nwyatt, After the 24 months on Forteo, I took one shot of Prolia and then Raloxifene 60mg. I will complete the 18 months of Forteo and then go back on the Raloxifene I think. The recommendation was Evenity and then Prolia for life, but Evenity was not approved and I am still on the fence about Prolia.

REPLY
Profile picture for mayblin
mayblin | @mayblin | Apr 3, 2025
In reply to @kar50 "I recently experienced my first travel experience with Forteo and it was challenging. I shopped for..." + (show)
Profile picture for kar50 @kar50

I recently experienced my first travel experience with Forteo and it was challenging.
I shopped for travel coolers, and after the hassle of the 4Allfamily website (intrusive, having to answer personal questions before allowing access to shopping, difficulty with the site in general), I opted to order a travel cooler with built in digital thermometer from eBay. The batteries were finicky, and I shopped at 4 different stores for replacements (just in case!) but wasn't able to find the right size.
It was a short flight from Sacramento to SanDiego, but by the time I got to my hotel the temp had exceeded 46 degrees even though it was within the time limit. My hotel refrigerator wasn't cold enough according to the extra analog thermometer that I had brought, so the maintenance person came to my room and his thermometer said it was actually cooler. The ice packs had to be stored in the hotel freezer because the room fridge didn't have a freezer. blah blah blah, it was a hassle! Then when we checked out, we had an afternoon on our own so the hotel kept the Forteo in one fridge and the ice packs in another! etc. I would love to hear from someone who has had better success so I can more successfully travel again.

Jump to this post

@kar50 i bought and used this one:
https://connect.mayoclinic.org/comment/1240327/
please also read the next comment by oopsiedaisy - a better price on vendor's website.

Someone posted a comment recently that a $40 medicine cooler is available on amazon. It uses gel however it has an external digital temperature display as well - nice!

For travels that involve unpredictable accommodations or schedules, the product with the link above gives you more control imo.

REPLY
Profile picture for lhmerida
lhmerida | @lhmerida | Jul 21, 2025

Did you hear back from anyone? What is your response to the drug do far? That is one of my choices.

REPLY
1 reply
Profile picture for nopainplease53
nopainplease53 | @nopainplease53 | Jul 21, 2025
In reply to @lhmerida "Did you hear back from anyone? What is your response to the drug do far? That..." + (show)
Profile picture for lhmerida @lhmerida

Did you hear back from anyone? What is your response to the drug do far? That is one of my choices.

Jump to this post

Following

REPLY
Profile picture for myrakoepke
myrakoepke | @myrakoepke | Jul 22, 2025
In reply to @ans "Curious, did you not go on a follow up medication after you stopped Forteo.??? I’ve been..." + (show)
Profile picture for ans @ans

Curious, did you not go on a follow up medication after you stopped Forteo.??? I’ve been told you need to go on something to maintain the gains realized. Can you share your scores , if you remember, before and after and now!!! WOW, you really has a good experienceThanjs for your input!!

Jump to this post

I was wondering the same thing, I have been on forteo for a little over two years and was told I need to go on a follow up to keep the gains, but I really do not want to.

REPLY
1 reply
Profile picture for njx58
njx58 | @njx58 | Jul 22, 2025
In reply to @myrakoepke "I was wondering the same thing, I have been on forteo for a little over two..." + (show)
Profile picture for myrakoepke @myrakoepke

I was wondering the same thing, I have been on forteo for a little over two years and was told I need to go on a follow up to keep the gains, but I really do not want to.

Jump to this post

You have to follow up with something. You can't just go from Forteo to nothing.

REPLY
Profile picture for broken13
broken13 | @broken13 | Jul 23, 2025
In reply to @nwyatt "What did you do/take in the 7 year interim?" + (show)
Profile picture for nwyatt @nwyatt

What did you do/take in the 7 year interim?

Jump to this post

I followed up Forteo with one shot of Prolia (had dental problems so did not continue with Prolia) Went on Evista (Raloxifene ) for the 7 years.

REPLY
View MoreView Less
Please sign in or register to post a reply.