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You might do better with a doctor or PA who's experienced with dementia. A doctor shouldn't be dismissive about this. As caregivers, we do have to step up and answer questions and give explanations that our spouse is not longer able to do. My husband's neurological specialist said she needed to do something in the lab and needed to be excused for a moment. She suggested that it would be a good time for me to visit the ladies' room. What she really wanted was to talk to me alone and I was able to fill her in on what had been going on. It's hard to tell in a 15 min. visit just how compromised an Alzheimer's patient is when he's still capable of putting on a good front for short periods. It's so easy to feel frustrated and resentful when you have to take over things you never had to do before, but the only way to deal with this is to stop fighting it and just get on with the job. In a way, this is our job now, so we should do the best we can. We're not getting out of it so going with the flow is better than swimming against the tide.

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Replies to "You might do better with a doctor or PA who's experienced with dementia. A doctor shouldn't..."

My spouse has always been intimidated by physicians. He has Parkinsons and I think she was having a busy day. I have big shoulders and I saw what she wrote on his health portal. I am going to address it and tell her why? She doesn't know him a as well as I do. She has been a great neurologist since we have had her. I will respond if I choose and do not really care how they feel about me. She has been the one that has done the most for my spouse since he was diagnosed. Not intimidated of physicians at all.. I understand what you are saying and thanks for your input.