I feel you. My son is 9.5 years old. When he was in the first grade, he fell asleep in class. I took him to the doctor and he tested negative for mono, strep, and flu. We sent him for more tests and he was positive for EBV with levels at 600. Two weeks later his levels were still 550. A month later, minimal change. I took him to several doctors in the interim...endo, neuro, infectious disease, and acupuncturist. The acupuncturist told me he needed to build his immune system and gave me herbs. I went to an immunologist and he ordered more tests than anyone else and he came back with inflammation in the brain. We went back to neuro and did a MRI and sleep test. Turns out he has a neurological sleep disorder that has now been confirmed by Stanford, two different neurologists in Texas. Neuros recommended stimulants. The immunologist put him on keto diet and gave him prescription strength probiotics. He started feeling better within a week or so. We kept to the acupuncture weekly for about 6 weeks. The second we decide he's ok and let him eat normally or stop the acidophilus he has a relapse and sleeps for 30 hours straight. You may want to look up KLS, Klein Levin Syndrome. It is very rare, but it made perfect sense for us. It usually stems from a virus. For us, EBV was the virus. He's now homebound and sleeps 15-20 hours a day but is completely normal for the 5 to 10 hours that he is awake. I am sending you healing thoughts. This is not for sissies. You got this regardless!