Thanks

I'm so sorry to hear this. They will probably deny me, too, then. Yes, please let us know what they have to say at John's Hopkins. Thank you!

If you are willing to travel, that opens up options. I’m just starting the process of getting a better assessment of my condition to better understand what treatment, if any is available. I will send along what options based on what I know. If anyone has the appetite for reading research, I can send some very good papers. Just let me know. That is where I learned about the connection between CD8 deficiency and chronic EBV, vitamin D deficiency and autoimmune diseases. There is also a link between EBV and certain cancers such as lymphomas. This is well established. But it does not mean because you have chronic EBV you will get cancer. I know that the diagnostics are changing and there are emerging therapies for that could be helpful someday and perhaps soon. Honestly, I was shocked when I first saw the chronic EBV and CD8 deficiency on my first test. I don’t even remember getting mono so I was surprised I couldn’t clear the infection or at some point it got reactivated. My test results never changed since the first time I took it almost ten years ago. My doctor ignored it and she she specialized in oncology when she lived in another state. What I am saying is we need to take responsibility for our health and welfare, proactively seek knowledge, answers and treatments. Our condition and that of loved ones is relatively rare, especially in the US, so we cannot expect most doctors to k ow what to do with it. Lastly, chronic EBV is not connected to chronic fatigue. That was established long ago. However, if you are concerned you have chronic fatigue, research was recently completed at Stanford that established biomarkers for this condition. So, chronic fatigue is real and it’s not in one’s head and it can be finally be diagnosed. I can provide a link to the research if anyone is interested. Stay safe.