Were you able to get an appointment at the Cleveland Clinic? I put in a request, and haven't heard back from them yet. They wanted to know what kind of doctor I want to see. I have no idea! I need them to tell ME who I need to see. I told them all my symptoms that I have been experiencing for 16 months and how this condition has completely changed/ruined my life, and who do they recommend? I was hoping they would have some experience in this area, as no doctor in my vicinity seems to know anything or be able to help me in any way.