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← Return to Treatment for chronic Epstein-Barr virus (EBV)
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Treatment for chronic Epstein-Barr virus (EBV)
Infectious Diseases | Last Active: Nov 26 9:26am | Replies (635)Comment receiving replies
Hi, thank you for responding.My husband went to the hospital over a year ago for chest & abdominal pain. From a CT they found a pseudo-aneurysm which they placed a stent. From lab results it was found that his gall bladder was only functioning at 10%. They removed gall bladder.
He has not been right since. He has been to Cardiac Dr’s; his heart is fine. He went to a Endocrinologist who couldn’t find anything wrong. Finally saw a Neurologist who ordered the EBV tests.
Positive for virus but not active. He went from being pretty active & able to fix anything in the house to barely functioning after 10am. Since CoronaVirus, he has been able to work from home. They have him on oral hydrocortisone due to secondary adrenal
insufficiency. As soon as it wears off his symptoms return. They also prescribed Cymbalta for nerve pain.
The Dr today Said there were no more tests she could perform. Is this it?? He is only 56.
Replies to "Hi, thank you for responding.My husband went to the hospital over a year ago for chest..."
They may have done the EBV tests because research is showing that Covid-19 can reactivate it. Ugh. I have low cortisol too. I am reluctant to use my meds so I take very little and only when I am sick. Your husband may want to experiment with taking his dosage and splitting it in two. That is what my endocrinologist is having me do. I would suggest he speak with his doctor about it. May help him from running out of steam so to speak.
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@sswonger Here is a link that may be helpful in answering questions about EBV.
https://ebvhelp.com/
It doesn’t surprise me he tested positive for the virus. Almost all adults have been exposed to EBV and will have positive EBV IgG antibodies. EBV IgM antibodies indicate it is active.
If he is feeling worse after the hydrocortisone wears off, it makes me wonder if it’s the adrenal insufficiency acting up due to all the stress he went through over a year ago. I’m no doctor and can’t advise on that. What I can say is don’t give up!!! Keep searching the best you can.
~Marianne~