@loribmt still trying to wrap around what all the doctors are saying and what I actually have. Meet with oncologist yesterday. The neurologist said that clival and C5 lesions were stable. Had a lung biopsy showed non-necrotizing granulomatous inflammation. The axillary adenopathy biopsy didn't show anything either. So now I need a bone biopsy since Sarcoids ( which they feel I have ) normally doesn't go into bones and more tests with a Pulmonary doctor to see if I really have Sarcoids. My head is spinning and how can someone first diagnosed with CLL, to lymphnoma to sarcoid. I feel so unwell still with headaches, night sweats, bone and muscle pain and dry cough.
More tests will give me a complete diagnosis. Thank you for asking!