← Return to Treatment for chronic Epstein-Barr virus (EBV)

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Treatment for chronic Epstein-Barr virus (EBV)

Infectious Diseases | Last Active: 4 days ago | Replies (609)

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@nataliem

Thank you for the hope and encouragement. This certainly is a battle, and it's hard to fight when you are always fatigued and brain fogged. I am taking supplements and have greatly improved my nutrition, and I will order the book you have recommended. My goal is to get back to work so I can afford all this, but I don't know if it's going to happen, and that is a HUGE source of stress. I never knew this could happen to a person, and no one I know seems to understand. Everyone just wonders why I don't get better. Thank goodness for this forum to find others who "get it," and can offer some help and advice.

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Replies to "Thank you for the hope and encouragement. This certainly is a battle, and it's hard to..."

Yes Nataliem, it is hard for other people to understand if they have never dealt with the awful fatigue and brain fog this illness can cause. I did find that an extreme amount of rest did help me when I was at my worst. I would wonder how I could sleep for 11 to 12 hours and still be exhausted when I woke up. But in order to work I would put myself in bed at 7:00 pm if necessary to be able to work the next day. And some of those days when I woke up, I still couldn’t make it! I would just call in and climb back in bed in tears. Eventually, 10 hrs did the job and even though I am better now, my body is still fighting high Titers in all (4) categories. So needless to say, I still have to be diligent on getting enough rest. My condition declines if I don’t get the rest I need every time. Pamper yourself and DO NOT feel guilty about it. The EBV monster can be raging inside and we look the same on the outside, so it is hard for people to understand the battle we fight. Get A LOT of REST and be good to YOU. You can feel better, but it will take time. Praying for you friend, Don’t give up, you will get there!