← Return to Treatment for chronic Epstein-Barr virus (EBV)

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@nataliem

Jonathan, I was diagnosed with Mono last Oct., and I have been sick ever since - 5 months and counting. It is looking like I will have to quit my job, since I absolutely can not work. I am still looking for answers, and also wondering if I will have to live like this the rest of my life. Just know that you are not alone, and others feel what you feel. That's not much to offer, I know. I am pursuing every avenue, even though I live in a very small city with not much to offer. I am astounded that people have been living with this for 20-30 years. How do they keep hope going? I watch family and friends living their lives with happiness and energy, and I get so angry. I need tips on how to keep going when I feel like throwing in the towel. What's the use? This is not living.

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Replies to "Jonathan, I was diagnosed with Mono last Oct., and I have been sick ever since -..."

Hi Nataliem, I hope I can encourage you today by saying YES you can get better! It will take hard work and diligence on your part. But you can and will get better. I know right now it probably doesn’t seem like it, because it’s been months and months of feeling Awful but there is hope. I have a few recommendations for you. First do NOT give up and be determined to beat this monster back down. They say there is NO Cure for getting the virus out of your system, so you have to get your immune system built back up again so IT can put the EBV monster back in a dormant stage. It takes time, to do this as my Dr. told me, “Kathy this is a marathon, not a sprint!” Second go on Amazon and order this book. By Dr. Jesse Stoff, Chronic Fatigue Syndrome, the Hidden Epidemic (aka, Epstein Barre Virus). If you type in Dr. Jesse Stoff Epstein, it should come up in the list. You can also order supplements from Amazon to be delivered directly to your door. You said you were in a small town, so not sure what your resources are there, but thank goodness for online orders. Dr. Stoff list a protocol in his book of specific supplements and diet which got me back on my feet when I first was diagnosed with the Reactivated Virus in my 30’s. It’s an easy read, and helps you to understand what the virus is doing and how to combat it and build your immune system back up. And last but not least, find a Dr. in an integrative practice. They will be willing to test you regularly to check your Titers and progress, as well as help you with meds and supplement choices on your road to recovery. I am being treated with Anti-Virals along with supplements, which I am hoping will help more. Most GP’s do not know how to treat this illness. Do your own research, don’t rely on Drs. Who are too busy and don’t understand what you are going through. Chronic Epstein Barre is a very unforgiving Foe and you are your best advocate. Yes people do have a life long battle with this illness, but there are ups and downs. Getting to know your needs for rest and adjustments in your lifestyle to meet those needs is important. You could have years as I’ve had, where it doesn’t bother you at all, once you are back on your feet. But then all of a sudden I got lax in my diet and supplements, coupled with work and family stressors, like caring for sick parents, and the EBV reared it’s ugly head again in my 60’s!!! Imagine my surprise! The good news is, it has forced me to pay attention to my health again, and it is gradually getting better. Soooo.... Take care of YOU! You are the only one that can. Give your body what it needs to recover, and be patient. Prayers for you my friend, keep your chin up. It will get better.