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Fatigue , and exercise.

Posted by dkelban @dkelban, Aug 16, 2024

There is a pattern to my fatigue (I have mixed connective tissue disease).. It's most pronounced, by far, in the afternoon. Anyone else have a pattern to their fatigue, and how much does moderate exercise help?

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melodyanne | @melodyanne | 1 day ago
In reply to @dkelban "Sorry to hear you're going through this? Autoimmune fatigue is so different from ordinary tiredness isn't..." + (show)
@dkelban

Sorry to hear you're going through this? Autoimmune fatigue is so different from ordinary tiredness isn't it? It's like the car just has no gas. It's a real pain in the ass.

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Yes, and I have been warned with ANCA GPA Vasculitis to do, but not overdo, as it could cause another major flare with more organ damage. So, moderation is the key for me.

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melodyanne | @melodyanne | 1 day ago
In reply to @dkelban "This disease sucks. I used to exercise vigorously until age 62. Now everything I used to..." + (show)
@dkelban

This disease sucks. I used to exercise vigorously until age 62. Now everything I used to love is a struggle, even just the concentration needed to play my guitar leads to exhaustion. It can lead to some dark thoughts when I contemplate this being my remaining life, which I will not act on. I just get sick and tired of being sick and tired.

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Understand. I was a walker and bike rider until I was 64. Then I began to feel bad, ear and sinus issues for which I had surgery last July. Then lung issues and next kidney issues kicked in. Finally diagnosed with ANCA GPA Vasculitis in November, then had a major flare with ICU stay. Not sure I will ever be "me" again, but very thankful I have finally begun to regain some strength. Praying for your renewed strength. Blessings.

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dkelban | @dkelban | 1 day ago
In reply to @melodyanne "Understand. I was a walker and bike rider until I was 64. Then I began to..." + (show)
@melodyanne

Understand. I was a walker and bike rider until I was 64. Then I began to feel bad, ear and sinus issues for which I had surgery last July. Then lung issues and next kidney issues kicked in. Finally diagnosed with ANCA GPA Vasculitis in November, then had a major flare with ICU stay. Not sure I will ever be "me" again, but very thankful I have finally begun to regain some strength. Praying for your renewed strength. Blessings.

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I'm so sorry to hear how bad you've got it. It's a real curse. Best of luck.

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sungaltoo | @sungaltoo | 12 hours ago

Yes my fatigue in the afternoon is worse after moving around and doing some chores. In the morning I’m exhausted from Myasthenia Gravis as my med wore off overnight. I take it and I’m relatively ok until about an hour before my next dose. I complained to my dr and we increased the amount of dosages and now I’m not as tired in between. In the afternoon I’m still fatigued even after I take a dose so I know it’s not the MG.
I’m no longer sleeping well at night and I have MCTD like my dad. When I can I exercise and feel good until the 2nd day after, at which I’m really fatigued. So of course I don’t exercise as much as I like or should. My dad and me were athletic so it’s hard to understand and tolerate

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dkelban | @dkelban | 10 hours ago

You sound like you're my identical twin. Best wishes for some remission. It's so strange: my immune system was my friend for 71 years. Oh well...man plans and the universe laughs.

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