Carcinoid cancer: Want to meet others

Posted by Ruth Ann @amyh2439, May 10, 2016

I would like to be involved in carcinoid cancer group as that is what I have.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

@tomrennie

I have been to Charlotte in the summer. The humidity can be a bit overbearing. Yes, officially diagnosed on 8/22/22. I started chemo 10 days later and have been on it ever since. I was getting progressively sicker for a few years prior. Though terrifying, at least I finally knew what was making me sick. I didn't realize it at the time, but I almost didn't make it. The diagnosis and successful treatment were a life saver for me. Because of this, my perspective on things are a little different than some. I am just happy to be alive. I try not worry about what I can't control. Not an easy thing to do. I also genuinely feel very fortunate. So far, I am still waking up everyday. I have met folks on here that aren't so lucky. Keep plugging away but also try to keep things in perspective. It could be worse. Do you get to cool off in the pool again today?

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Do u have any sugar issues

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@dchance1

Yes I will be in there today.! Its even hotter and more humid then yesterday.. 109 I think due to the humidity. I am trying to be positive, but its hard.. with very little speaking to the drs. I know surgery is coming up.. one tumor is a grade 1... the other I do not know what it is. Nor the stage of anything yet. I am praying that mine is early enough and with surgery that I do not have a return..Fingers crossed. Glad you are doing well.. stories like yours gives me hope.

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I am glad it helped. I was on metformin for diabetes for about 4 years prior to my cancer diagnosis. My oncologist said that might have been the first sign of the cancer. But, nothing we can do about it now. We agree that we learn from our past, but we only can change what we do today and in the future. Now that my cancer is under control, I take one insulin shot a day and have no worries about sugar. Good thing too. I have some chocolate consumption to catch up on haha.

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@tomrennie

I am glad it helped. I was on metformin for diabetes for about 4 years prior to my cancer diagnosis. My oncologist said that might have been the first sign of the cancer. But, nothing we can do about it now. We agree that we learn from our past, but we only can change what we do today and in the future. Now that my cancer is under control, I take one insulin shot a day and have no worries about sugar. Good thing too. I have some chocolate consumption to catch up on haha.

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I was told 17 yrs ago that I have diabetes. It was staying steady in control until recently. I read that this can make sugars wacky. Though the last week, I have been getting CONTROL on it.. I am trying hard to though. Went swimming again tonight, control sugar, get in better shape for intestine resection surgery coming up. sigh...... wishing that when they take it.. I will NEVER see it or others of its kind again!!! Not sure if that is possible. Haven't even seen an oncologist yet.

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@dchance1

I was told 17 yrs ago that I have diabetes. It was staying steady in control until recently. I read that this can make sugars wacky. Though the last week, I have been getting CONTROL on it.. I am trying hard to though. Went swimming again tonight, control sugar, get in better shape for intestine resection surgery coming up. sigh...... wishing that when they take it.. I will NEVER see it or others of its kind again!!! Not sure if that is possible. Haven't even seen an oncologist yet.

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If you have not seen an oncologist yet, how do you know all that you know?

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@tomrennie

If you have not seen an oncologist yet, how do you know all that you know?

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How do I know I have NETS? Surgeon who did a bio on small intestine. Results came back as Nets.

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@dchance1

How do I know I have NETS? Surgeon who did a bio on small intestine. Results came back as Nets.

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I mean preparing for intestine resection surgery coming up? I am wondering if I misread or missed something that you typed?

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@tomrennie

I mean preparing for intestine resection surgery coming up? I am wondering if I misread or missed something that you typed?

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Only a CT scan at ED dept and a bio dune at colonoscopy

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