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← Return to Treatment for chronic Epstein-Barr virus (EBV)
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Treatment for chronic Epstein-Barr virus (EBV)
Infectious Diseases | Last Active: 3 days ago | Replies (634)Comment receiving replies
Hello everyone-
New member here-I signed up because I am desperate. I've just been diagnosed with CAEBV. I know it's serious, I know it's rare. I think I'm in shock. I can't believe I'm never going to get better. I feel absolutely terrible. It seems to alternate-one day I'm ok, the next is rock bottom. No rhyme or reason-I'm trying to duplicate my feel good days as far as food, supplements, sleep, etc....but it isn't working. Please, has anyone been diagnosed with this? Please also know the difference between CAEBV and EBV-Mono-Reactivated EBV. I need help, I need hope. Thanks in advance.
Replies to "Hello everyone- New member here-I signed up because I am desperate. I've just been diagnosed with..."
I too was diagnosed with chronic Epstein Barr 6 months ago. The first time I knew something was wrong was about 3 yrs ago, I suddenly felt lightheaded and really tired. Now, for the last few months I've been feeling weak, tired, muscles ache, lightheadedness cold sweats etc. Seems like I've seen every doc in town with no help except high dose of vitamin c and d. This condition is ruining my life!
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@tmccarthy2019 CAEBV and reactivated EBV are sometimes used interchangeably in error. CAEBV is a more severe form affecting multiple organs and can lead to death. It is usually defined with a marked elevation of EBV PCR (DNA). A reactivated form is definitely debilitating but not considered a deadly form. Reactivated EBV is not well acknowledged by conventional medicine. It usually gets ignored or you are simply told to exercise, eat well, and take an antidepressant. For more info and helpful links, check out
http://www.BackToLifeWellness.blogspot.com ...I'm curious as to how you were diagnosed.