← Return to Treatment for chronic Epstein-Barr virus (EBV)

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Treatment for chronic Epstein-Barr virus (EBV)

Infectious Diseases | Last Active: 3 days ago | Replies (634)

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@momnxtdr

I'm sorry you are feeling this way and being mistreated in my opinion by the medical professionals. When I was your age, I had to change my primary physician 6 times to get someone to take me serious. I was told that I was a healthy young person with my life ahead of me and to put my energy into my career instead of being a hypochondriac. The 6th doctor said "if I'm the 6th, you must truly believe something is off and your coloring isn't healthy. I'm going to order an MRI since all your bloodwork is normal." Well, I had NINE tumors in my thyroid. They sent me to endocrinologist and they were malignant. The following day I had my thyroid removed and we started radiation treatment a month later. It wasn't in my head and I wasn't a hypochondriac. I'm not saying this is your issue. I'm simply sharing that you need to be your own advocate and keep getting new doctors until someone is willing to dig deeper. My son is 7. He's been sleeping 16-20 hours for 2 months. Same thing... "it may be in his head". Turns out he has EBV and TB.

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@momnxtdr Your son is lucky to have you fighting for him! Be persistent. Keep searching! 🙂