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Treatment for chronic Epstein-Barr virus (EBV)

Infectious Diseases | Last Active: 3 days ago | Replies (634)

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@smcivor94

So my appointment with the ID specialist didn’t go too well - the general vibe I picked up was that he thought I was totally bonkers describing all my ailments and blamed anxiety for most of them. He said I was run down bla bla. He’s ordered tests for EBV, CMV, coeliac disease, hepatitis and HIV to reassure me more than anything. Results due in a couple of days so I will post an update then. He said no further action required assuming the results are all fine. What do I do now?! I have lost all faith in the medical system. Someone help!

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Replies to "So my appointment with the ID specialist didn’t go too well - the general vibe I..."

@smcivor94 I am so sorry to hear that things did not go well. However, it does not surprise me. From what I have noticed, most people in our situations have better luck with a naturopathic or functional medical doctor. Hopefully he ordered an entire EBV panel that includes the IgM, IgG, and early antigen antibodies. But even with all of those being out the roof and the IgM positive (that detects current infection), I got the same brush off from ID. He did draw an EBV PCR (which detects DNA of the virus in the blood) and that was negative. What I learned from other MDs and PhDs who actually treat patients with recurrent EBV is that the DNA may only show up in the blood for a few weeks in the beginning. I also got the impression that the traditional doctors I had seen thought it was "all in my head." Don't let that stop you from getting on a path to getting well. You sound like a very driven person, not lazy! Didn't you say you were in law school? Anyway, has your doc ordered anything to check out your pain, like an ultrasound? With the way your illness came on, it sounds like the beginning of CFS (chronic fatigue syndrome). Of course, I am not a doctor and cannot diagnose. I hate that diagnosis though because most doctors just stop there and don't try to get to the root cause. Often times it starts with an infection. You can check out http://www.yourfibrodoctor.com for more info on that. If ID is finished with you after getting the bloodwork back, it may be worth it to look into an alternative healthcare practitioner. However, it is important to still be in touch with your primary care doctor.