Treatment for chronic Epstein-Barr virus (EBV)

This may seem a little strange, but I was wondering had anyone on here had trouble with severe constipation as a result of EBV?

@coryelizabeth I have heard different things regarding this. However, I have had EBV relapses (with a positive IgM) at least 4 times in the past 25 years and my husband (whom I have known the entire time) has not been affected.

Thank you for the confirmation, @uldiver. I am mystified as to why you would seem to assume that I am interested in a clinical trial and that I do not meet the criteria? Yes, I've read a couple of Dr. Montoya's etal research papers and multiple papers by Dr. Cohen etal.

@smcivor94 I have not had an issue with that. However Kasia Kines discusses a vagus nerve and EBV hypothesis. Since the intestinal tract relies on the vagus nerve, it can become impaired. (The Epstein-Barr Virus Solution, pp 61-62)

Yes! Soon after I was diagnosed I had a severe problem. I hadn’t changed my diet any, I have always eaten mostly a plant based diet and drank plenty of water so I was puzzled as to why this would happen. What I didn’t take into account was that my physical activity level had changed a great deal. I went from being a very active person to one who was on bed rest. The constipation was severe.

Gjul16 I’m sorry I’m really foggy as I’m crashing tonight. I don’t understand your post. Hope the info was helpful. I didn’t know if you fit the criteria as I don’t know you so best for you to look into it as possible option. Most of the causes of ME/CFS are from EBV and related viruses like HHV 6. They think that’s what started all my issues. Idk about the trials-there are so many going on right now. I’d like to help and join one in future to help with research. I hope that made sense? Sorry btw the fog and ADD I don’t always get my words out correctly. Best wishes!

@michellebelle glad I’m not the only one! I’m hoping I find some answers with my ID specialist at the end of this month. How long did it last for you? I’ve been struggling for over 8 weeks now and I eat a good balanced diet with lots of fibre etc. Even laxatives are sometimes ineffective 🙁 sorry for the TMI! I can completely relate with the exercise. I too was bedbound for many weeks when struck with this virus. It’s awful you have my sympathy. Hope you’re on the mend. @mrmie I’ve also read the odd thing or two about that hypothesis after spending some time researching yesterday evening. Who knows it seems a mystery so far!?

@coryelizabeth I have a reactvation and a new case of mono with neither number dropping. This has been documented for a year so who knows how long it has been going on. I have a very high intolerance to gluten which goes hand in hand from what I have read. I'm 64 and have dealt with feeling bad my whole life. If I had known then what I know now I would have gone gluten free immediately after getting the first mono as a freshman in high school. EBV is so much more than just mono.

Ive commented before on here about a remedy that has helped me. I too struggled for years with the EBV. I came across something on another forum and it helped me, I went from wanting to die to having a life again in less than 2 months. I hope this will help...

MONOLAURIN- a very mild herb. It has the same properties as coconut milk and breast milk, 0 side effects. It attacks the shield around the virus and leaves it vulnerable. You have to start low and increase over time, something about killing the cells of the virus and the body cannot process them quick enough and makes you feel bad. Has to be gradual. I took one capsule a day(500mg) for a week than 2x day for another week then 3x...etc.

REI-SHI MUSHROOMS-a it's also mild with 0 side effects. It's an extract that boosts the immune system and attacks the virus that was weakened by the monolaurin.

IT WORKS. I had a second test done a month after I started these herbs and it showed the EBV was still present but the virus was all DEAD cells. From live active cells to dead cells in one month. It's been 3 months now and I haven't had but a handful of BAD days.
The past year I haven't had a handful of GOOD days.

I hope this helps anyone with these terrible disease.

I totally understand how you felt. I am on Monolaurin. Just up to 2 per day but keeping going. Glad you feel better!