I am a little late to the game but this came up in my recent search about this topic and really hit home! I was diagnosed with Mono just about two years ago. It first appeared as chronic fatigue, and then I had symptoms equivalent to the worst strep throat I have ever experienced. The throat symptoms went away in about three weeks, but my fatigue took much longer to subside. Over the next year and a half, I would get similar throat symptoms about once every other month, which was very frustrating.

I finally started to feel normal again, but noticed that I constantly feel fatigued and just not well, in a way that is hard to describe. Sometimes it involves dizziness (like very mild vertigo), heavy head and eyes, feeling of being in a fog or bubble, and some days that involve severe headaches and even worse fatigue. I have not had a day in my memory since my mono diagnosis that i truly felt well.

I got a blood test this week to ensure that my iron levels, etc, were ok, sine my symptoms seemed to be that of someone with anemia, and it came back that the EBV virus had resurfaced, which I have had happen before in the last two years. I guess that I have chronic EBV? My PCP referred me to an infectious disease specialist, but I am weary of taking more medications because I feel that they are ruining my body in other ways. Has anyone experienced something similar or found any solutions?