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Lichen Sclerosus: Any other women dealing with this disease?
Autoimmune Diseases | Last Active: Oct 5 11:38am | Replies (399)Comment receiving replies
So glad to find this group. I am 64 and was diagnosed 6 weeks ago. Clobetasol has not helped. I have not only white tissue between my vagina and anus, but also ulcers around my anus. So painful.
Biopsy of white area and two ulsers confirmed LS and no bad cells, thankfully. But the sores are multiplying and I haven’t seen much on this from prevention to healing.
My GYN said to go back to steroid after biopsies heal hoping using it longer will work. I am not convinced. I am hoping to see my dermatologist soon.
I will take any advice on preventing and treating ulcers.
Thank you
Replies to "So glad to find this group. I am 64 and was diagnosed 6 weeks ago. Clobetasol..."
Hi pns999. Ask your Doc about StrataMGT ointment. Its a semipermeable wet wound coating. It may help those awful painful blisters heal. Also, there is a spray version of lidocaine. While short lived, it can give some relief. The strataMGT has to be ordered and is pricey, but each tube lasts a long time. It really helped me, when nothing else had worked. Coconut oil is not semipermeable and prevents the air exchange needed for the tissue (your blisters) to heal. Its good for the dryness though, but so is the estrogen cream. Good luck!!!
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Hello!
I see a GYN once a year I have also been to a dermatologist twice. Biopsies as well.
The only thing that has helped for me
in between using Clobetasol is ESTROGEN cream Recommended by both my GYN and dermatologist. Of course you need a prescription. Maybe discuss with your GYN.
For me, stress causes flare ups. I feel the estrogen works better.
Take care!