This is my first post. I’ve been struggling with reactivated EBV throughout 2018. I believe it was brought on by the stress of having a vagus nerve stimulator surgically implanted to control my seizures, and a very difficult 2016 - 2017 trying to get my seizures under control with dozens of medication changes. None were effective (terrible psychiatric side effects), which is why I opted for the VNS, and that has been a much better treatment option. Aside from becoming ill with EBV.

My thyroid function is off (I have Hashimoto’s), and I’ve been swinging between being hyper and hypo. So my meds have been changed several times in the past year. I have more symptoms of being hypo. Add those on top of my EBV symptoms. Not fun. I don’t dare brush my hair for fear I might lose what’s left of it!

I’ve tried three courses of antivirals. I take liposomal Vitamin C, L-lysine and monolaurin daily, plus magnesium, calcium, zinc and a B-complex. Weekly, per my doc, I take 50,000iu of Vitamin D and an additional 2,000iu per day, but I’m still deficient. I guess my body isn’t absorbing or using D for some reason. Maybe because I had 20 precancerous colon polyps removed in 2017. No one has an answer. I spend money out of pocket to get B12 injections and IV vitamin infusions because my doctors have been of little help and I just want to feel better and reclaim my career, time with my family, my life.

Essentially, I’m bedridden because of the fatigue and pain. This has made my anxiety and depression unbearable. I’m at my wit’s end. There is only so much clean eating, so many vitamins and therapy one can do to keep at this day after day. Where are the doctors who can help? Who want to help? Who are qualified to help? Mayo’s Infectious Disease department refused my case, so where do I go now?